BLACKSWAN FOUNDATION

objective of the Blackswan Foundation (2010) is to contribute to the development of research on rare and orphan diseases worldwide. The organize the RE(ACT) Congress  every two years and they also started in 2014 the RE(ACT) Community, a digital platform for crowdfunding and to connect all stakeholders intested in rare diseases.   You can subscribe to their newsletter in the following link Blackswan Newsletter

Enlaces de Interes:



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INFORMACIÓN DE CONTACTO:

Instituto de Investigación de Enfermedades Raras (IIER)

Instituto de Salud Carlos III.

Pabellón 11

Monforte de Lemos 5

28029 Madrid

Para más información, contactar: registro.raras@isciii.es  



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