D’Genes is an association composed by people affected by rare diseases, their families and professionals from different areas. D’Genes offers, among other things, information about resources, training and news as well as providing a forum for the exchange of information and dissemination. Their website (home page shown below) is only available in Spanish.

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Instituto de Investigación de Enfermedades Raras (IIER)

Instituto de Salud Carlos III. Pabellón 11   Monforte de Lemos 5   28029 Madrid

Para más información, contactar: registro.raras@isciii.es   

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