The Spanish Federation of Rare Diseases –Federación Española de enfermedades raras (FEDER) – includes families affected by rare diseases in Spain. Its main goals are to increase awareness and make visible their common needs and propose solutions to improve their lives, to represent their interests, defend their rights and promote specific measures to achieve their complete inclusion.    

Enlaces de Interes:

Instituto de Investigación de Enfermedades Raras (IIER)
Pabellón 11 Monforte de Lemos 5 28029 Madrid
Para más información, contactar: registro.raras@isciii.es  
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