NATIONAL

FEDER’s misión is to provide visibility to the needs of families with rare diseases in Spain. The objective is to obtain solutions to improve their quality of life

D’Genes is an association composed by people with rare diseases, their families and different professionals. The main objective of D’Genes is to provide a space for the exchange of ideas and to promote dissemination to increase awareness of the general population to the problems that people with rare diseases have
         

Enlaces de Interes:



EJP RD Resultado de imagen de feder

INFORMACIÓN DE CONTACTO:

Instituto de Investigación de Enfermedades Raras (IIER)

Instituto de Salud Carlos III.

Pabellón 11

Monforte de Lemos 5

28029 Madrid

Para más información, contactar: registro.raras@isciii.es  



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