CANCELLED! 11-14 March 2020 in Berlin, Germany: RE(ACT) Congress & IRDiRC Conference 2020

Due to a situation of “force majeure” and international travel policies associated with the #COVID19 outbreak, the congress is postponed. Dates will be communicated as soon as possible. We apologize for this inconvenience.#REACTCongress #IRDiRC #EJPR pic.twitter.com/lgk8Ybi4ep — RE(ACT) Community (@react_community) March 3, 2020 This joint event will continue the RE(ACT) Congress series (6th edition) and IRDiRC … Read more

5-6 March 2020 in Barcelona, Spain: SOLVE-RD ANNUAL MEETING 2020

The next Solve-RD Annual Meeting will take place from 5-6 March 2020 in Barcelona, Spain. It will be hosted by Solve-RD partner CNAG-CRG at the Parc Científic de Barcelona (PCB). Further information on the meeting venue, transport in Barcelona, accommodation, and costs can be found in the general information document. The draft agenda can be found here. … Read more

13 February: ISCIII and AMIFE update the challenges for the earlier diagnosis in rare diseases

  El director del Instituto de Investigación de Enfermedades Raras del #ISCIII, Manuel Posada @mposada53, ha introducido el estado actual del diagnóstico y tratamiento de estas enfermedades. pic.twitter.com/4PnpjZOqMD — Instituto de Salud Carlos III (ISCIII) (@SaludISCIII) February 13, 2020 La segunda sesión de la jornada está tratando la participación de los pacientes, los medicamentos huérfanos, … Read more

29 February 2020: World Rare Disease Day ‘Grow With You, Our Hope’

  The Spanish Federation of Rare Diseases (Feder) has published its “Grow with you, our hope” campaign for World Rare Disease Day. The campaign value the struggle of the entities that are part of the associative movement. The European Organisation for Rare Diseases (Eurordis) and Rare Diseases International RDI) are together in this campaign.   For more info on … Read more

8th Conference of Undiagnosed Diseases Network International 7/8 February 2020 Nijmegen, The Netherlands

8th Conference of Undiagnosed Diseases Network International 7/8 February 2020 Nijmegen, The Netherlands Agenda   Helene Cederroth, from the @WilhelmFound provided us a good lesson in the UDNI meeting of today @UDNIss. Undiagnosed cases need all of us. Families still ask us for their diagnoses and therapies @UDNconnect @SaludISCIII @irdirc @EJPRareDiseases @EvaBS14 @dgenesmurcia pic.twitter.com/RHI8dpzLiD — … Read more