SpainUDP aims to offer a multidisciplinary approach to those patients who have long sought a diagnosis without any success. It is part of several International projects (UDNI, RD-CONNECT, SOLVE-RD) and it also is linked to other IIER’s national programs such as: the National Biobank of Rare Diseases (BioNER), Spanish Rare Diseases Registry Network (SpainRDR); and the Spanish National Mutations Database (SpainMDB).
“International Projects”
UDNI http://www.udninternational.org/
RD-CONNECT http://rd-connect.eu/
SOLVE-RD http://rd-connect.eu/
IRDiRC http://www.irdirc.org/
EUROBIOBANK http://www.eurobiobank.org/
REDBIOBANCOS http://www.redbiobancos.es/Default.aspx?i=10
RD-HUB http://biospecimens.ordr.info.nih.gov/
FUNDACION WILHELM http://www.wilhelmfoundation.org/wf.aspx
FUNDACION BLACKSWAN https://www.blackswanfoundation.ch/en/
“Other IIER programs and projects”
SPAIN RDR https://spainrdr.isciii.es/es/Paginas/default.aspx
REGISTRO NACIONAL DE ENFERMEDADES RARAS https://registroraras.isciii.es/Comun/Inicio.aspx
BioNER http://bioner.isciii.es