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FEDER’s misión is to provide visibility to the needs of families with rare diseases in Spain. The objective is to obtain solutions to improve their quality of life | |
D’Genes is an association composed by people with rare diseases, their families and different professionals. The main objective of D’Genes is to provide a space for the exchange of ideas and to promote dissemination to increase awareness of the general population to the problems that people with rare diseases have | |