Patients that want to be considered for SpainUDP Program should register in the “Registro de Pacientes de Enfermedades Raras” (Registry of Patients with Rare Diseases) of the IIER – Patients should provide all the clinical information available showing all studies done up to that moment and clinical reports reflecting the current clinical situation of the patient (

Other requirements necessary for a patient to be included in the Spanish Undiagnosed Disease Cases Program –SpainUDP:

There are different routes to apply to Access the Program: