Research Support Resources from the IIER
National Rare Diseases Biobank (BioNER)
It provides biological samples from patients for scientific research and the development of diagnoses related to rare diseases.
Rare Diseases Patient Registry(RePER)
A national database that collects information from patients with rare diseases in Spain, essential for research and improving patient care.
National Networks on Rare Diseases
Spain RDR (Spanish Rare Diseases Registry)
A network of registries and data on rare diseases in Spain, aimed at creating a solid foundation for research and the diagnosis of rare diseases.
A network of biobanks that facilitates access to biological samples and clinical data to advance rare disease research.
Patient Support Organizations
Spanish Federation of Rare Diseases (FEDER)
It organizes and supports families and individuals affected by rare diseases, and promotes the visibility of these diseases in society. It also facilitates patient access to the SpainUDP program.
An association that helps patients with rare diseases and works to improve the quality of life of those affected, offering social support and assistance in diagnosis.
Objective Diagnosis Association
Supports individuals with undiagnosed rare diseases through collaboration with research programs and the promotion of the importance of diagnosis.
