Collaborations

SpainUDP aims to offer a multidisciplinary approach to those patients who have long sought a diagnosis without any success. It is part of several International projects (UDNI, RD-CONNECT, SOLVE-RD) and it also is linked to other IIER’s national programs such as: the National Biobank of Rare Diseases (BioNER), Spanish Rare Diseases Registry Network (SpainRDR); and the Spanish National Mutations Database (SpainMDB).

“International Projects”

UDNI http://www.udninternational.org/

RD-CONNECT    http://rd-connect.eu/

SOLVE-RD http://rd-connect.eu/

IRDiRC  http://www.irdirc.org/

EUROBIOBANK     http://www.eurobiobank.org/

REDBIOBANCOS   http://www.redbiobancos.es/Default.aspx?i=10

RD-HUB            http://biospecimens.ordr.info.nih.gov/

FUNDACION WILHELM  http://www.wilhelmfoundation.org/wf.aspx

FUNDACION BLACKSWAN  https://www.blackswanfoundation.ch/en/

Other IIER programs and projects”

SPAIN RDR         https://spainrdr.isciii.es/es/Paginas/default.aspx

REGISTRO NACIONAL DE ENFERMEDADES RARAS  https://registroraras.isciii.es/Comun/Inicio.aspx

BioNER   http://bioner.isciii.es

Enlaces de Interes:

 

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INFORMACIÓN DE CONTACTO:





Instituto de Investigación de Enfermedades Raras (IIER)

Instituto de Salud Carlos III. Pabellón 11   Monforte de Lemos 5   28029 Madrid

Para más información, contactar: registro.raras@isciii.es   





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