Wilhelm Foundation shows the photo project focused on UNDIAGNOSED rare diseases cases. This foundation has been working in the promotion of the undiagnosed rare diseases patients giving them a major visibility https://wilhelmfoundation.org/photo-project-undiagnosed
Spainudp scientists from the Rare Disease Research Institute (IIER) and the Rare Disease Network Biomedical Research Centre (CIBERER) ISCIII has published in the Orphanet Journal of Rare Diseases’ an investigation describing five new cases of a very rare rare disease. There are approximately 6,000 defined rare diseases, affecting millions of people worldwide, a number that … Read more
UDNI increases resources and capabilities through its USA Network. The NIH Undiagnosed Diseases Network has awarded 16 four-year grants to academic and medical centers in the USA.
SpainUDP: The Spanish Undiagnosed Rare Diseases Program